Last week with Mommy

I have to go back to work next week. I am stressed about leaving her even though I'm sure she'll be okay. We've just been relaxing at home together. We haven't gotten to do much of that. Lydia is still doing great. She's started smiling a lot the last few days. It steals my heart every time. Coal got to come home finally. It's nice to have everyone together. He's done great with the baby.

Swallow Study

Well the surgeon's nurse called today reguarding the swallow study. They are reccomending a feeding tube to be put into her stomach for a while until she can get her swallowing and breathing better coordinated so she doesn't aspirate. We haven't made any decisions yet. Sounds like it wouldn't be for about 6 weeks so we're thinking we should repeat a swallow study before we do it whatever we decide.
We did her sleep study last night. No results yet, but I know she didn't drop her oxygen all night. Which is improved from the last time.
She weighed 8 lbs and 14 oz today. Dr. Brockman said that she's on the lower side of normal, but so far she's still within normal growth percentages and actually gaining at a good pace. She's a strong little girl and I keep praying she stays that way to get through all this.

Didn't Pass

Well Lydia didn't pass her test today. They said she did remarkably better than her original swallow test, but still aspirated some. I haven't heard from the doctors yet. I hope we find something out this week. Otherwise Miss Lydia is still doing great. Has a bit of a cough still, but she's getting better.

Welcome Home Baby

WE'RE HOME!! Last night around 4ish the doctors decided that we could go home. We still have to come back Monday to do that swallow study. It is so wonderful to be home. I think we both slept great and it was really nice for all 3 of us to be under the same roof. 24 days was plenty!!

Pass update

They are going to repeat the swallow study Monday using a passive nipple. This puts less pressure on her jaw and she doesn't have to suck. The speech pathologist said there is still a chance she will aspirate with this and they may have to thicken. Keep those prayers coming!!

PASS

Lydia passed her swallow study!! She had a little trouble with sucking, but the swallows she did take were good. We are going to start trial feedings and see how that works do develop her sucking. Hopefully we get to go home soon. Mommy and Baby are deffinitly ready!!

Another Good Day

Lydia had another good day. She still has just bit of a cough, but otherwise she's doing great. She got some of her 2 month vaccinations today and didn't mind them too much. We're hoping she's been "studying" for her swallow study tomorrow. It would be such a relief if she passed! Either way we'll get some answers tomorrow and know a little better what direction we're heading in. Thank you everyone for all the support and prayers. There is no way we would make it through without you.