We've gone tubeless!!!!!!!!!!!!!!

Miss Lydia got her tube out last Monday. She is eating up a storm. It seemed like we would never get here. Thank you to everyone for your ongoing support and love. We just need to get her hickman out and she'll be completely wireless!

My Big 4 month old

My little Lydia isn't so little anymore. She is up to 14.9 lbs and getting bigger everyday. She passed her last swallow test. We're trying to get her to eat more by mouth. It will take time, but I think she'll do great. She also got her jaw pins out. It's amazing how much she's talking and moving now. They must have been bothering her more than we thought. She amazes us everyday!!

Last week with Mommy

I have to go back to work next week. I am stressed about leaving her even though I'm sure she'll be okay. We've just been relaxing at home together. We haven't gotten to do much of that. Lydia is still doing great. She's started smiling a lot the last few days. It steals my heart every time. Coal got to come home finally. It's nice to have everyone together. He's done great with the baby.

Swallow Study

Well the surgeon's nurse called today reguarding the swallow study. They are reccomending a feeding tube to be put into her stomach for a while until she can get her swallowing and breathing better coordinated so she doesn't aspirate. We haven't made any decisions yet. Sounds like it wouldn't be for about 6 weeks so we're thinking we should repeat a swallow study before we do it whatever we decide.
We did her sleep study last night. No results yet, but I know she didn't drop her oxygen all night. Which is improved from the last time.
She weighed 8 lbs and 14 oz today. Dr. Brockman said that she's on the lower side of normal, but so far she's still within normal growth percentages and actually gaining at a good pace. She's a strong little girl and I keep praying she stays that way to get through all this.

Didn't Pass

Well Lydia didn't pass her test today. They said she did remarkably better than her original swallow test, but still aspirated some. I haven't heard from the doctors yet. I hope we find something out this week. Otherwise Miss Lydia is still doing great. Has a bit of a cough still, but she's getting better.

Welcome Home Baby

WE'RE HOME!! Last night around 4ish the doctors decided that we could go home. We still have to come back Monday to do that swallow study. It is so wonderful to be home. I think we both slept great and it was really nice for all 3 of us to be under the same roof. 24 days was plenty!!

Pass update

They are going to repeat the swallow study Monday using a passive nipple. This puts less pressure on her jaw and she doesn't have to suck. The speech pathologist said there is still a chance she will aspirate with this and they may have to thicken. Keep those prayers coming!!