To the Doctor

We went to the doctor the week after Lydia left the hospital. The doctor said she might have something called Pierre Robin Sequence. This is usually found with babies that have small jaws. We won't know for sure until July when we see the geneticist, but the treatment is that same either way. He wanted to do what is called a jaw distraction. Which means they move the jaw forward to make more room for her to breath and hopefully help with the laryngomalacia. The surgery consists of her jaw being turned out 0.5mm several times a day for 15 days for a total of 25mm. After the jaw is moved the pins are left in for 6 weeks for the bone to grow. We will then repeat her sleep study and swallow study and see if she's improved.